The 37 1/2 year old version of me got on an elevator and pressed the button for the third floor today. It was only my second time on in In Patient Unit at the hospice; but it for sure won't be my last time. Today I sat down with a volunteer co-ordinator to discuss my areas of interest in volunteering with hospice and as soon as the paper work comes back I can start. In the mirror of the elevator I caught a glimpse of the 22 year old me, who all those years ago also punched an upward number and headed to a hospice office.
At the time I was on my way to what I know would call an anticipatory grief counsellor. My mom had just been diagnosed with cancer and she was dying fast. It has been said that you don't find hospice, hospice finds you. You could say the same thing about death; nobody goes looking for it, it finds you. Death had made it's customary appearances in my childhood. Lurking in the corners as it often does not really affecting you but just letting you know that it's there. There was the death of a distant grandma, then 2 uncles in the same year none of who's funerals I went to. When I was 16 a favorite friend committed suicide; death rode up boldly to center stage of my life. It was a collective experience, I can't remember the death of M without talking about it in terms of "we." We standing for all my classmates. We lost a friend. And like the rabbits in Watership Down we clung to each other in fear of death personified like they did in fear of The Black Rabbit of Inle. Then as quickly as he had come death slipped away again. His shadow wouldn't sneak up on me until late college.
It was the equivalent of the literary device called foreshadowing; something happened that would give clues about what was to happen. We were doing group presentations for a geography class I think. It was the morning of the presentation and one of my friends in my group didn't show up. It was looooooong before the age of texting and we had no idea where she was. I was frustrated and disappointed. A week later she returned and told us that her Mom had died rather unexpectedly. "Mom's die?" how sad. It was so sad that I went home that night and discussed with my Mom how sad it would be for her to die. A few months later my Mom WAS dead. A few years later my Dad would marry that same friend from college's aunt and we would become step cousins. Foreshadowing........
In my head there's a line or memory of demarcation. A memory that stands as the last normal, stable thing before the world crashed around me. I wonder if every crisis has that? Has the "one moment we were doing X and then the phone rang" moment. One moment I was trying to shut the morning news off and then........... One moment I was arguing with my husband and then.............. One moment we were laughing in the rain and then................ Yeah, the major stuff comes with those moments. So one moment I was registering for summer school at college. Listening to Garth Brook's "Ain't Goin' Down "Til The Sun Comes Up" on a yellow Sony walkman and the next moment my Mom was being diagnosed with cancer and told that she only had 2 months to live.
I was an only child, and while we didn't have a diagnosis then it's clear to me now that I had depression back then. In a move that would change the course of all of our lives my Dad got me an appointment counsellor. Death had found my family. He had us in his cross hairs. Hospice also found us. One of those organizations that you have no idea even exist until you need them and then you're sure glad they're there. 5 years ago my oldest son was medi-vaced to a hospital in another state upon his birth. Ronald McDonald House stepped in and gave us a place to stay. That's another organization that you don't know anything about until you need to.
I don't remember the counsellors name and only some of what we talked about but I remember feeling very relieved when I left one of our sessions. You know how in the movies families gather at the deathbed of a loved one and everyone is happy and close? Here's something you don't see in the movies; sometimes families argue all through a death. Arguments so big doors are slammed. Sometimes old sins are dragged out. Sometimes scape goats are created. Sometimes families fall apart and people leave. My family was one of those. I was the grieving person who wanted to talk about it. Who wanted to know exactly how long my mom had and how the death would happen. I dared to imagine that my life would continue without my Mom and that thought scared me. Yes I was self centered, yes some nights I was more concerned about what I was going to wear to a party than my moms health but that was ok. Hospice told me so. Hospice told me that it was ok to grieve the way I was grieving and that talking about death didn't make it happen. When my Mom died 9 weeks after diagnosis a hospice volunteer met me at the house and she was the only person I let into my room that night. Hospice pulled me through.
Shortly after that my Dad joined the board of directors at hospice. They went on to build a 12 bed free standing hospice house. Both my parents volunteer there regularly as well as for their thrift shop and in other areas. A year ago a childhood friend of mine came to live out his last days in "the house" as we call it. Honestly, that caught me a little off guard. While I know that Vancouver has a children's hospice called Canuck Place, I still equate hospice, or maybe just long term dying with the old. C wasn't old. He couldn't be, his birthday is the day before mine. In my head the house was built so that people like my mom wouldn't have to die in a hospital nor a living room. It wasn't built for extraordinary young men. But I'm sure glad it was there. Last week a friends mom died. She was an amazing lady and although I'm sad that she died I'm thrilled that she died in hospice. It seemed a fitting and dignified end to a life well lead. I miss you Jaquie.........
And so all these years and all these states later my work with hospice begins. I hope that one day years from now someone will say of my bereavement counselling that "she got me through." Comforting from where you have been comforted right? Giving back.......... It's going to be hard I'm sure; but worth it. My current work with doing began today by getting back into an elevator.
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